Posted by: seattledizzygroup | February 28, 2015

Living with a Rare Disease

Rare Disease Day 2015

Today, February 28th, is Rare Disease Day!

An estimated 350 million people worldwide or about 1 in 10 people in the US are living with a rare disease.

So, even if you don’t have a rare disease, you probably know someone who does.

To learn more about rare diseases, or to find out how you can get involved and help raise awareness for rare diseases, please visit: http://www.rarediseaseday.org

The 2015 theme is: “Living with a Rare Disease: Day-by-Day, Hand-in-Hand”

Rare Disease Day 2015 puts the focus on the daily lives of patients, families and caregivers who are living with a rare disease.

The complex nature of rare diseases, coupled with limited access to treatment and services, means that family members are often the primary source of solidarity, support and care for their loved ones. The Rare Disease Day 2015 theme Living with a Rare Disease pays tribute to the millions of parents, siblings, grandparents, spouses, aunts, uncles, cousins, and friends whose daily lives are impacted and who are living day-by-day, hand-in-hand with rare disease patients.

For more information, see:

http://www.rarediseaseday.org/article/theme-of-the-year-living-with-a-rare-disease

About Rare Disease Day

Rare Disease Day began in 2008 and is celebrated internationally on the last day of February every year with the objective of raising awareness about rare diseases and their impact on patient’s lives.

Learn more about US Rare Disease Day: http://www.rarediseaseday.us/about

Get Involved!

The purpose of Rare Disease Day is to harness the creative energy of the millions of people around the world with rare diseases — and the millions who care about and assist them— to raise awareness and generate action. You can help achieve this goal throughout the year.

Find out how you can get involved: http://www.rarediseaseday.us/take-action-now

National Organization for Rare Disorders (NORD)

The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.

http://www.rarediseases.org

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