Posted by: seattledizzygroup | February 28, 2014

Rare Disease Day 2014

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Alone We Are Rare.  Together We Are Strong.

Today, February 28th, is Rare Disease Day!

This year the theme is “Join Together for Better Care.”

Find out how you can get involved and help raise awareness for rare diseases.  www.rarediseaseday.org

About Rare Disease Day

Rare Disease Day is an international advocacy day to bring widespread recognition of rare diseases as a global health challenge. The day is celebrated on the last day of February every year.

Learn more about Rare Disease Day: www.rarediseaseday.us/about/

Take Action Now!

There are many ways you can get involved this Rare Disease Day.

http://rarediseaseday.us/take-action-now/

Tell Your Representatives That You Care About Rare Diseases

If rare disease issues are important to you, ask your elected officials to join us in celebrating Rare Disease Day.

http://salsa3.salsalabs.com/o/51076/p/dia/action3/common/public/?action_KEY=13145

Raise Your Hand For Rare Disease Research

Visit the webpage (below) and click the link to donate $1.  Lundbeck (a global pharmaceutical company) will donate $1.00 towards rare disease research for each click. Once we reach 10,000 clicks, Lundbeck will donate $10,000.

http://rarediseaseday.us/raise-your-hand/

Rare Disease Day 2014 Official Video

http://www.rarediseaseday.org/article/rare-disease-day-2014-official-video

National Organization for Rare Disorders (NORD)

The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.

https://rarediseases.org/

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